GÁNH NẶNG CHĂM SÓC NGƯỜI BỆNH ĐỘNG KINH CỦA NGƯỜI CHĂM SÓC CHÍNH TẠI BỆNH VIỆN TÂM THẦN TỈNH NAM ĐỊNH

Abstract

Objectives: Describe the current situation of the primary caregiver's burden of caring for people with epilepsy and identify some factors related to the burden of caring for people with epilepsy at Nam Dinh Provincial Psychiatric Hospital. Method: The study subjects were people with epilepsy and their primary caregivers. Research period: From March 2023 to the end of June 2023. Cross-sectional descriptive study. Results: People with epilepsy in the age group 18-40 account for the highest proportion. Primary caregivers in the age group >60 years old account for the highest proportion. The rate of quality of life of people with epilepsy is high at 12.5%; the low is 39.1%. The burden of care for patients with severe epilepsy is 58.3%. The age group of the patient and primary caregiver is related to care burden with p < 0.05. Inverse relationship between care burden and patient's quality of life (r=-0.478; p<0.001). The stress, depression, and anxiety of the primary caregiver are positively related to the burden of care: Stress (r= 0.81; p<0.001), anxiety (r= 0.70; p<0.001), depression (r= 0.92; p<0.001). There is a positive association between caregiving burden and social support (r= - 0.59; p<0.001). Conclusion: The burden of caring for people with epilepsy from average to higher is very high. There is a relationship between caregiving burden and quality of life, level of social support, stress, anxiety, and depression.